I was at the beginning of my teaching career–after multiple career changes due to undiagnosed health reasons–when I had to stop working because of my fibromyalgia which was then diagnosed as Ehlers Danlos Syndrome. I then tried to find work that worked around my condition but that proved futile and caused more pain and long-term damage that I could have known.
Every doctor I have asked has said that getting disability for Ehlers Danlos Syndrome is almost impossible. This is true for people I know who are living in poverty, unemployed by their EDS symptoms. I know people who have been denied repeatedly for almost a decade. I have been told to expect more denials than usual—most people get denied at least once.
I can only hope that this petition does those of us who need disability but are living without it some good.
Please, please sign:
Ehlers-Danlos Syndrome is a genetic degenerative joint and connective tissue disorder that debilitates those diagnosed from birth.
Those with EDS should be qualified under SSI/SSDI because this condition not only makes it difficult to impossible for someone to work, it can also be fatal.
For further information please go to http://www.ednf.org, it may save a life.
This will also encourage more doctors to educate themselves as well as possibly increase research on the subject. We desperately need your help!
Learn about EDS.